April 2020

American Academy of Dermatology Registry

The American Academy of Dermatology has also begun a registry to focus on the dermatologic manifestations of the COVID-19 virus. Unlike the COVID Foot Registry, the AAD registry is only for healthcare professionals and is not limited to those specializing in dermatology. Professionals from any country may enter a case.

AAD is seeking several types of cases for inclusion:

  • Patients with COVID-19 (confirmed or suspected) who develop dermatologic manifestations
  • Patients with existing dermatologic conditions who subsequently develop COVID-19
  • Patients on existing dermatologic medications who subsequently develop COVID-19

The case report form should take about 5-7 minutes to complete; registrants will be asked to provide their name, email address, and hospital. Patient information to be collected includes demographics, details about the patient’s new onset dermatologic condition, past medical history including past dermatologic conditions and treatments, as well as details surrounding the patient’s COVID-19 diagnosis and treatment. However, all of this detail is not required to enter the case and “Don’t Know” is an answer option. As for COVID-19 diagnosis, “clinical suspicion only” will be among the answer options. The registry is not meant to affect patient care. The registry is simply meant to record events that have taken place.

Currently, there is no place to upload photos. If you indicate there is a photo that can be shared and you also indicate on the form that it is acceptable to contact you in conjunction with the case, they will contact you about further collaboration. Some institutions may still require a data use agreement to share non-identifiable patient data; reach out to covidregistry@aad.org if this applies to you.

Patient identifiers such as name or date of birth will not be collected. All de-identified information will be kept strictly confidential and will only be shared with researchers compiling information. Data will be stored on a secure Redcap server at Massachusetts General Hospital (Partners Healthcare). Information and updates will be shared via the COVID-19 American Academy of Dermatology website.

If you are a patient who would like your case included, share the link www.aad.org/covidregistry with the person providing your care.

For more information, contact covidregistry@aad.org.

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