Orthotic management of CMT: Dynamic solutions for active lifestyles

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Click on image to download the complete supplement in its original form PDF

Sponsored by an educational grant from:
The Charcot-Marie-Tooth Association (CMTA)

Meet your match

1Limb-Jordana-nolabelFor people with Charcot-Marie-Tooth (CMT) disease, it’s not easy to find a healthcare professional who understands the disease and its complexities. Sometimes a patient has to visit multiple clinicians before finding one who is right for the job. But finding that perfect match—someone who knows what symptoms to look for and which interventions will work best—can literally change a patient’s life, from one filled with frustrations to one focused on solutions.

The same can be said for finding the right orthotic device. Given the vast numbers of CMT subtypes, and the fact that even patients with the same subtype may have different symptoms, it’s entirely possible that the first ankle foot orthosis (AFO) a patient tries may not be the best match for that person’s symptoms, activity level, and lifestyle priorities. A patient may need to test-drive multiple AFOs before finding the one that’s the best fit in all senses of the word.

But, like finding the right clinician, finding the right AFO can be life-changing. At the most basic level, an AFO can improve gait and balance. But those improvements lead to other benefits—greater confidence, a more active lifestyle, a more positive outlook.

That’s what this special issue is all about. On one level, it’s about matching the right AFO to the right patient. But really, it’s about changing lives. In the pages that follow, you’ll find the information you need to do both.

By Jordana Bieze Foster, Editor

Viewpoint


Orthotic devices and CMT: Everyone deserves an aha! moment

This guide to orthotic devices for people with Charcot-Marie-Tooth (CMT) disease has been a dream of mine for a long time. I was diagnosed with CMT1A at the tender age of 18 months, but didn’t learn about orthotic devices for CMT until 2007…

by Susan Ruediger

Features


Overview of CMT – Clinical challenges and opportunities

Early diagnosis and early intervention in people with Charcot-Marie-Tooth disease give clinicians and patients a valuable head start on keeping symptom progression in check.

By Cary Groner

Orthotic management: A symptom-based, dynamic approach

Orthotic devices, tailored to each patient and adjusted for disease progression, can improve mvobility by addressing gait impairments and maintaining stability.

By Cary Groner

AFO Success Stories:

Four CMT patients who have discovered that finding the right AFO makes a huge difference in their activity level and quality of life.


Diane Covington: AFOs positively impact every aspect of her dynamic life

It’s a happy coincidence that Diane Covington lives just a few miles from a New Balance store, for two reasons. The brand’s sporty and comfort styles are perfectly suited for Covington’s life on the go.

By Jordana Bieze Foster

Brennan Ryan: With AFOs and cool sneakers, this 10-year-old can be a regular kid

If you ask Brennan Ryan what his favorite after-school activities are, he’ll tell you, “Basketball, baseball, flag football, and Cub scouts.” Ask him what his favorite part of school is and he’ll answer…

By Robyn Parets

James Robinson: AFOs give him the confidence to stay active in retirement

Some may think a midlife diagnosis of Charcot-Marie-Tooth (CMT) disease might necessitate a sedentary retirement. Not James Robinson, who learned he had CMT1A when he was about 52 years old.

By Robyn Parets

Jeff Seitzer: AFOs and staying fit help manage his mild symptoms

It’s hard to imagine that a 56-year-old man who swims, plays golf, works out, and even practices yoga has Charcot-Marie-Tooth disease (CMT). But Jeff Seitzer, who was diagnosed more than 40 years ago, has managed to keep his symptoms at bay.

By Robyn Parets

Company Profiles


Allard USA: Get Back Up Today!

The most common treatment is an ankle-foot orthosis (AFO) which provides support to the ankle and foot. The AFO helps control foot drop and ankle instability by providing a better sense of balance.

Kinetic Research: Carbon Fiber Orthopedic Braces

Composite material advances over the past 10 years have improved the design creativity and possibility for clinical orthotists worldwide. In the past, an ankle orthosis required a completely solid and fully encompassing design in order to attain the mechanical control…

Custom Composite: Specializing in advanced composite applications for the O&P industry

The mechanics behind our family of Charcot Marie-Tooth (CMT) braces centers around the medial strut design. The medial strut folds into the footplate in the arch area, making the brace very stable when patients are in midstance…

SureStep: A Revolutionary Bracing Concept

SureStep manufactures a variety of products but is primarily known for the SMO (Supra malleolar orthosis) and pediatric AFOs (ankle foot orthosis)…